Comments on: Congenital Heart Disease: Broken Hearts of the Big Bend

By: catluver1981

catluver1981 — Thu, 18 Jun 2009 21:06:55 +0000

What a touching …
What a touching video. I had a baby girl in 2005 with CHD. She had one surgery, and was doing pretty good, but needed more. She died one month to the day she was born. I was on medical, and miles from home. They stopped my medical cause I couldnt get home for my yearly review, so the hospital stopped treating my baby. Isnt that wonderful?? : (

By: RuralGypsy

RuralGypsy — Thu, 18 Jun 2009 21:06:55 +0000

I am a 42 year old …
I am a 42 year old Congenital Heart Patient..
My defect is called D-Transposition of The Great Vessels. I am seeking all who have succeeded age 40 without a heart transplant.
I would like to know their success story, and the quality of life for which they have lived. I have been told, I am the oldest living, in the United States, with this particular Heart Defect. Is this true????
I accept any istance available, in finding others like myself. Time is of the essence.

By: mikefrob

mikefrob — Thu, 18 Jun 2009 21:06:55 +0000

This is a great …
This is a great video- I saw it tonight for the first time. Its so strange to see so many other children in the hospital- just like Kenley was. I love at the end how the video shows how healthy they all are! Thank you! Garrett (Kenley’s Mom)

By: Logansmommy913

Logansmommy913 — Thu, 18 Jun 2009 21:06:55 +0000

my child to was …
my child to was born with CHD great video

By: AddiesMamma

AddiesMamma — Thu, 18 Jun 2009 21:06:55 +0000

My daughter, Adelle …
My daughter, Adelle, was born with a CHD, HLHS. She passed away, but her message beats in my heart every day. Keep spreading awareness, for many of these babies/ children it is their only hope.

By: GlitterSno

GlitterSno — Thu, 18 Jun 2009 21:06:55 +0000

Great video! My …
Great video! My daughter was born with a CHD so this touches me deeply. Thanks for sharing

By: epw4edwards08

epw4edwards08 — Thu, 18 Jun 2009 21:06:55 +0000

Karen, just perfect …
Karen, just perfect! Tears! Ahh!
See you tonight:)
Thank you for all you do!
Penny

By: Scrib1975

Scrib1975 — Thu, 18 Jun 2009 21:06:55 +0000

Love the Vid
Love the Vid